Lindsey and I have been overwhelmed with the requests for T-Shirts and Bracelets to support Team Bex and spread Infantile Spasms awareness. We have been touched by the kind notes and emails that we have received from people that we didn’t even realize were following her story. So far we have commitments for 58 shirts/bracelets, which means we have to put in another order! This has resulted in $1,200 raised so far to donate towards research for Infantile Spasms. We have had several large donations and to those people we can’t thank you enough. Of course, every donation helps, no matter the amount so to everyone who has offered their support....THANK YOU! There, of course, is still time to buy a shirt/bracelet and you can find the details here.
As we mentioned, the funds are going to be used to help with research on IS. We are donating the money specifically to the Epilepsy Foundation of North Carolina. I have reached out to the Executive Director there, who has assured me that all of the money will be designated solely towards IS research. She has had a longtime interest in infantile spasms and actually participated in two of the first national conferences on IS for patients and professionals back in the 80’s. She has enlisted us to be part of a research committee for IS in North Carolina and we couldn’t be happier to join this group. I could tell from my conversations with her that she is passionate about helping parents and children who suffer from this disorder and we are excited to work with her on this goal.
Team Bex is gaining momentum!