Lindsey and I have been
overwhelmed with the requests for T-Shirts and Bracelets to support Team Bex
and spread Infantile Spasms awareness. We have been touched by the kind notes
and emails that we have received from people that we didn’t even realize were
following her story. So far we have commitments for 58
shirts/bracelets, which means we have to put in another order! This has resulted in $1,200 raised so far to
donate towards research for Infantile Spasms.
We have had several large donations and to those people we can’t thank
you enough. Of course, every donation
helps, no matter the amount so to everyone who has offered their support....THANK
YOU! There, of course, is still time to
buy a shirt/bracelet and you can find the details here.
As we mentioned, the
funds are going to be used to help with research on IS. We are donating the money specifically to the
Epilepsy Foundation of North Carolina. I
have reached out to the Executive Director there, who has assured me that all
of the money will be designated solely towards IS research. She has had a
longtime interest in infantile spasms and actually participated in two of the
first national conferences on IS for patients and professionals back in the
80’s. She has enlisted us to be part of
a research committee for IS in North Carolina and we couldn’t be happier to
join this group. I could tell from my
conversations with her that she is passionate about helping parents and
children who suffer from this disorder and we are excited to work with her on
this goal.
Team Bex is gaining
momentum!
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